Turner Syndrome | Teen Ink

Turner Syndrome MAG

By Anonymous

     Anyone looking at me would see a normal 17-year-old girl with blond hair and blue eyes. Those taking a closer look would recognize that I barely reach 5'2". What my physical appearance does not reveal is that I have Turner syndrome, but then, most people don’t have the faintest idea what that is. Turner syndrome is a chromosomal condition that occurs in women and involves complete or partial absence of the second x chromosome. While I may not be one in a million, I am one in 2,000. Short stature is one of the most common characteristics associated with the syndrome, but serious heart and kidney problems and even hearing loss can occur.

When I was diagnosed at 12, my whole life began to make more sense. I never understood why when the rest of my classmates were growing like weeds, I remained a seed stuck in the ground. I had always struggled being the shortest girl in my class and was known as “Midget” or “Shorty.” After watching the classic “Willy Wonka and the Chocolate Factory,” I became known as Oompa Loompa. Though these names hurt me deeply, I refused to let my classmates dampen my enthusiasm for school and learning. I got involved in lots of extracurricular activities, though they sometimes posed problems. Because girls with Turner syndrome tend to have poor coordination and perception, my athletic ability was nonexistent. I loved to sing, but it proved difficult to share a microphone with a group of girls seven inches taller. Despite this, I continued to drive myself to prove that heart and brains could make up for lack of height.

Once diagnosed, I was given a treatment plan that involved daily growth hormone injections. I am the type of person who worries about a doctor’s appointment for weeks in advance, so getting used to injections every day - and even worse, giving them to myself - was a true test of my character. However, I jumped this hurdle and after five years, I have grown 11 inches. This was an amazing response and I consider it my own little miracle.

I am not upset that I have Turner syndrome. It has molded my character and transformed me into the person I am today. I have learned that you need to rise above the negative in your life. Eleanor Roosevelt once said, “No one can make you feel inferior without your consent.” This statement has always inspired me and so I will journey on to the next stage of my life with pride and self-confidence.

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This article has 103 comments.

Ellimee said...
on Jul. 21 2011 at 12:16 pm
I feel short sometimes too and after reading this my life just got better. Thanks for expressing the truth about overcoming troubles. Very motivational ;)

on Jul. 20 2011 at 4:11 pm
WeeSunshine BRONZE, Saint Louis, Missouri
1 article 0 photos 3 comments

Favorite Quote:
"An author has skill when he/she can pull their reader into their story effortlessly. J.R.R. Tolkien is one!" - my friend

thank you writing this! It's good to know that behind each exterior there's a real person inside with passions and interests just like everyone else. Your stamina stands out and gives encouragement to others!

on Jul. 20 2011 at 3:47 pm
MoriahMae BRONZE, Myrtle Beach, South Carolina
2 articles 32 photos 3 comments

Favorite Quote:
« Il faut bien que je supporte deux ou trois chenilles si je veux connaître les papillons » ƸӜƷ ƸӜƷ ƸӜƷ

that's normal height, cousin....

AmyMichie GOLD said...
on Jul. 20 2011 at 2:28 pm
AmyMichie GOLD, Saint Johnsville, New York
12 articles 4 photos 9 comments

Favorite Quote:
Live in the now. <3

This was very inspiring because i am one in 20,000 as well...i was diagnosed when my mom was pregnant with me. i am 13 and over 5 foot. I dont have any symptoms besides a droopy eye.

on Jul. 20 2011 at 10:27 am
morethanunusual BRONZE, Metuchen, New Jersey
2 articles 0 photos 14 comments
you must live in a tall neighbor hood... I'm 4'9" because of scoliosis, but i got used to it.

Pinkypetite said...
on Jun. 13 2011 at 5:34 am
well, having turners is more than just being short. You struggle with knowing you're different, that you will likely be infertile, you have to be closely monitored for heart and kidney problems, and many, like myself, have trouble socially, because of a learning disorder that makes it hard to "read" people, and the simple knowledge that you are "different". i am 33 years old, and still remember my mom having to give me a pep talk, and pretty much force me to go to school when i was a kid. i am blessed now, but i wouldn't be a kid again for anything. it did teach me to have compassion for others, and that's something i hope to pass along to my own son.

AiLing said...
on Jun. 13 2011 at 12:15 am
I have Turner's Syndrome too! I am now 27 years old and 4 foot 7. I was diagnosed at the age of 14, and by then Growth Hormone helped very little. But I am still fighting on, I"m in my final semester of medical school :)

on Jun. 6 2011 at 8:29 am
K.M.S.Shear BRONZE, Cherokee, Iowa
2 articles 0 photos 57 comments

Favorite Quote:
"Some people think writing is a waist of their time. For me it’s a way to draw an image of myself through the painting of words."

it good that you found confidence

on May. 9 2011 at 11:59 am
Ahbreejerae SILVER, Eagle Creek, Oregon
8 articles 0 photos 8 comments

Favorite Quote:
"Beneath the makeup and behind the smile I am just a girl who wishes for the world."
-Marilyn Monroe

I'm 4'10 :/

on Apr. 23 2011 at 3:28 pm
WafflesMissesYou BRONZE, Juneau, Alaska
1 article 0 photos 2 comments

Favorite Quote:
You dont have to feel
like a waste of space
you're original
cannot be replaced

exactly! im short too im in 8th grade and im barely 5 feet. im excited though because i have grown like 2 inches in the past couple of months! its true us shorties do get all the guys:) everyone else in my grade has been like 5'11" since like 5th grade and they are still getting taller! i like being short though :) <3

luvscats said...
on Apr. 23 2011 at 12:19 pm
luvscats, Conshohocken, Pennsylvania
0 articles 0 photos 2 comments
Hi my name is Celeste and I have Turner's too. I am 4'10 and still growing. I am supposed to reach 5 feet. I just wanted to say you did a great job.  I don't often talk about my TS so I am glad someone out there can let people know how people with TS feel.  I just wanted to say thank you! :) 

on Apr. 23 2011 at 11:45 am
FeelTheRomance18, Tucson, Arizona
0 articles 0 photos 40 comments

Favorite Quote:
love looks not with the eyes, but with the mind, and therefore is winged cupid painted blind. -Lysander, A Midsummer Night's Dream

you are awesome.

on Apr. 23 2011 at 11:43 am
FeelTheRomance18, Tucson, Arizona
0 articles 0 photos 40 comments

Favorite Quote:
love looks not with the eyes, but with the mind, and therefore is winged cupid painted blind. -Lysander, A Midsummer Night's Dream

you have inspired me. great peice.

on Apr. 22 2011 at 2:59 pm
KianaJoe1324 BRONZE, Los Lunas, New Mexico
2 articles 0 photos 4 comments

Favorite Quote:
Live like there's no tomorrow<3

Sounds like me!! I get called those exact names at school but im 4"6" im in middle school.. even tho im short i have really good cordination and im really good at sports..the good thing about being short too is you get the guys!!! hahaah

scenechic said...
on Apr. 1 2011 at 1:58 pm
p.s i have ts too(:

scenechic said...
on Apr. 1 2011 at 1:51 pm
yes it is hard for us but as she said in her article she never let it get her down. i don't either. my neices and nephew's love that im short because i seem more like a child (im 17) lol but don't let it get you down, think positive and it will work in our favor someday. :)

scenechic said...
on Apr. 1 2011 at 1:47 pm
!!!! wow this sound's a lot like my diagnosis and hardships the thing is i was diagmosed at birth and im  4' 11" im proud to be a "shorty" or "oompa loompa" or "midgit" cuz it's unique and we can always banned toether and show this world we are fun and we have spunk(: keep up the good spirits and lets show this world we can lead normal lifes(:

on Mar. 30 2011 at 4:19 pm
Brooklynn SILVER, Lake Villa, Illinois
9 articles 0 photos 15 comments

Favorite Quote:
"life is 10% of what happens to me and 90% of how i react to it" John Maxwell

hey i give you kudos for having the spirit you do, and thanks for writing this because  your story sounds just like mine. Im also 5'2" and i have horrible coordination i will have to get checked for this. So thank you,

on Mar. 10 2011 at 7:14 pm
to.hold.the.sun SILVER, Maryville, Tennessee
9 articles 0 photos 49 comments

Favorite Quote:
"You spend your whole life stuck in the labyrinth, thinking about how you'll escape it one day, and how awesome it will be, and imagining that future keeps you going, but you never do it. You just use the future to escape the present." -John Green

Ironic; I just learned about this in Biology. Anyway, you are definitely an inspiration. It makes me realize that some of the problems that I'm facing are very petty compared to this. Keep on going, girl, especially when you can write like this!

on Mar. 10 2011 at 4:57 pm
Cosmicpupp BRONZE, Cherry Hill, New Jersey
1 article 0 photos 3 comments

Favorite Quote:
"That which we call a rose my any other name would smell as sweet"

u go girl! the way u handled having turner syndrome is amazing. its people lyk u tht inspire me :)